Where we volunteer

Everyone at Ryonet is unique, we all have different passions that drive us personally to volunteer. This is where you can see what ’cause’ pushes us to be a better member of our communities.

This page lets you see what touches our hearts and heads and drives us to be the best for those around us.

Check back as we add to the list of what we love.

William Syndrome- https://www.williams-syndrome.org

Williams syndrome (WS) is a genetic condition that is present at birth and can affect anyone.  It is characterized by medical problems, including cardiovascular disease, developmental delays, and learning disabilities.  These often occur side by side with striking verbal abilities, highly social personalities and an affinity for music.

WS affects 1 in 10,000 people worldwide – an estimated 20,000 to 30,000 people in the United States. 

People with Williams syndrome tend to be social, friendly and endearing.  Parents often say the joy and perspective a child with WS brings into their lives had been unimaginable.

But there are major struggles as well.  Many babies have life-threatening cardiovascular problems.  As they grow, they struggle with things like spatial relations, numbers, and abstract reasoning, which can make daily tasks a challenge. As adults, most people with Williams syndrome will need supportive housing to live to their fullest potential.  Many adults with WS contribute to their communities as volunteers or paid employees; often working at assisted living homes for senior citizens, hospitals and libraries, or as store greeters or veterinary aides.  

Just as important are opportunities for social interaction.  They are extremely sociable and experience the normal need to connect with others. The are the host of any party wether they threw it or not.